Chile Mummy in Chile

E’s Ordeal in a Santiago (Public) Hospital

The moment when my son stopped breathing was also the moment when I left my body.

I had pictured this happening a thousand times before. When he was a newborn and so helpless in my arms, I’d race to check on him every time he slept, paranoid about ill-fitted sheets and mattress gasses. As he grew, every cough weighed on my mind like a heavy stone, pressing to the corners every other thought. I suddenly saw danger everywhere; I had changed. I was no longer Helen but Mummy, and I was a lioness, ready at all times to protect my cub.

But when Emilio’s eyes glazed over and widened until the eyelids could open no further, my reaction was not how I would have expected. As his lips turned purple and his mouth spewed forth foam, I was helpless on the sidelines as Luis shrieked “What do we do?! He’s not breathing, he’s not breathing!!” His tiny body, just one year and a half old, writhed and shook on the floor as Luis began pumping his chest. I remember Luis screaming at me to find someone – anyone – but his voice was so faint in my ears next to the dull ringing that had begun.  Suddenly, I was looking down at the room from somewhere else, watching Luis give CPR to Emilio, but he was not the Emilio that I knew.

Luis screamed at me to go and I ran from the house, barefoot and in my pajamas. First I ran to the store below us. I will never forget the look of disbelief and fear on the face of the woman that works there.  We both ran into the street. The first car I saw was Manuel’s, and he was eating a sandwich. “Manuel! My son is not breathing! We need a hospital now!” I shrieked and he threw his sandwich from the window. The next moment Luis was there, also barefoot and also in his pyjamas, and we got in the back. Manuel raced at the speed of sound to Roberto del Rio public hospital, in Recoleta, tooting the whole time so that he parted the cars on Avenida Recoleta like a Chilean Moses. Emilio was alternating between states of breathing and not-breathing, his eyes opening and then disappearing from his swollen face. The moment we arrived we raced through the doors without noticing the guards or other people. Doctors and nurses dropped their cases and came running, and Emilio was immediately hooked up to the IV.

“Why would you come here like that?” One of the nurses asked me when Emilio was stable.

“What do you mean?” I replied, confused.

“What happened that you could not get dressed and put shoes on?” She asked again, her eyebrow raised pointedly to the sky, like a bow shooting an arrow straight at my heart.

I couldn’t find the words at first. All I could think was how much I wanted to wipe her face clean of that smug look.

“My son was not breathing, had turned blue and was having a seizure. There was no time to put our shoes on.”

She just looked at me. “But why couldn’t you put your shoes on?”

The next hour passed in a blur as we waited, spoke to doctors and waited some more. No-one was very friendly and especially not the nurses. Emilio had chronic diarrhoea that one time covered all of my clothes and the floor, so Luis left to go home, and bring us back supplies and (of course) our shoes.

I was holding Emilio when it happened again. Like the calm before the storm, I knew something was about to happen because I remember turning to Luis with panic and saying “Something’s going to happen!” A minute later his head arched back and he began shaking and arching uncontrollably in my arms. I gave him to Luis who put him down on the bed and I ran from the room to find help. I saw a doctor in the corridor ahead and I screamed to him for help and he came running. This time, the room flooded with doctors, and Luis and I were pushed to the side. It was like a scene from a movie.

We were asked to leave the room so that they could do a lumbar puncture into his back to test for meningitis. Even though there were people and children crying all around us, all we could hear on the other side of the door were the inhuman sounds that Emilio made.

Almost straight after, we went with Emilio to the other side of the hospital for a CT scan. There was a delay because Emilio took a very long time to fall asleep with the aneasthetic. I remember the doctor – who was with us thoughout Emilio’s ER stay – thought this was highly amusing.

Luis went in with Emilio while I waited outside. At this point, the morning’s events finally caught up with me, and I turned around into the wall and just sobbed. I stood there, barely able to breathe under the weight of the fear and exhaustion I felt, until I felt a hand on my shoulder. A middle-aged woman stood there with a tissue. “Tranquila,” She told me, “everything will be all right.” Her friendly face was like a beacon of hope for me in that moment of despair.

Emilio did not have meningitis but he did need to be hospitalized to be tested further. We were then transferred to the children’s ward. This was a long corridor with rooms off of it to the left, each one containing four beds/cots. Every wall was lined with windows into the other rooms, and there was one television and one basin. Beside each bed was a single plastic chair. The toilet was on the first floor (we were on the fourth) at the end of a very long hallway. It had no toilet paper or soap. The doctors we saw spoke English (to a degree), were young and very personable. They read me our rights and the rules of the hospital and asked me to sign on the dotted line. I did so. They then asked Luis to leave because only one person could be inside the ward at a time.

11193386_10153239583175097_2503925879591835345_n
Lovely view from our window

Seven days and seven nights were passed there. The first night was agonizing because I could not figure out how to sleep on the chair without a) falling off and b) breaking my neck.   The other parents rolled down the side of the cot and lay their heads on the mattress beside their baby, but Emilio was far too unstable to have a side down.   I had taken a small suitcase (carry- on size) filled with spare clothes for Emilio and it was on the floor beside the chair. I opened it and sat in it on top of the clothes, and was asleep instantly. Moments later a kick to the leg woke me up to a hissing woman who told me it was the chair or leave. I did not fall back to sleep.

By the time Luis arrived the next morning I was almost delirious. I was desperate to talk to him however, to hear some support and tell him how Emilio had been. I also wanted to tell him that the 20minute window when all parents had to leave their child (morning and night) had actually been 1 hour and a half. All the parents had to wait outside the children’s ward during this time, as it was a time when all the doctors did their morning rounds. We all stood like sardines against the open door, craning our necks for the sounds of our crying children. I heard Emilio hysterically screaming, and the doctor came running to me in shock. Emilio had gone crazy when he had seen me leave, and was now flailing about in his cot, banging his head into the bars viciously hard and pulling his IV out. His eyes were circles of fear. Seeing him like this was enough to break my heart for a second time.

Luis and I managed two words before angrily being told to get out. Our absence caused Emilio to lose the plot again. We didn’t talk, and I went home. I hadn’t wanted to, but I was desperately tired and I wanted to speak to my parents. We had no hot water at that time so I talked to them while I boiled water for a bath on the stove and returned to smoking cigarettes, and then slept in a stupor for several hours.

At the hospital, Luis told me he had absolutely no idea what was going on. Emilio had had numerous tests done but no doctor had spoken to him. This worried me because Emilio did not seem to be improving in any way – in fact he looked ten times worse than when we had come in! He couldn’t stand, he shook, he could barely open his eyes, and all he did was make this horrible noise. He didn’t want cuddles either and just writhed when I held him, but he didn’t want to sleep either. He was desperate for something. I had been forbidden to breastfeed him because of his earlier vomiting, but I could see he wanted something. He had been staring at something fixedly for a while when he began banging his head on the cot. I picked him up and immediately he began to struggle against me. He is trying to walk, I thought, but where to? I put his feet on the floor and supported him and in amazement he went straight to my bottle of water and tried to pick it up. With that I knew there was something he was not getting from his IV, so I went out to the nurses, who immediately told me to go away. Ignoring them, I walked the ward until I found a doctor and strongly requested he see my son. He did so, and agreed to increase Emilio’s IV dose of water. Literally a minute after doing so he was asleep. It was the first moment of silence in a long time.

Night time was a struggle for everyone. It was impossible to sleep when the lights were barely dimmed, when the radio blasted all night, and when assistants and nurses came in constantly singing and whistling. In our room there was a newborn baby who must have been born premature. The mother, a young girl, visited every day but at night the baby was always alone. It screamed almost the entire night, every night and no-one came to look after it. Across from me, there was a mother of four, who had a daughter a few months older than Emilio. She had a number of health issues, and the mother held and breastfed her constantly, to the point where I could only be in awe of her mothering. She later said that her milk had dried up long ago but it was the only thing that could calm her daughter down when she was hospitalized.

Most of the week we didn’t know what was going on because no-one came to see us or answer our questions. I grew to resent the nurses who were very rude, but more so the technical assistants, who lorded about. Very few of the workers had patience with my Spanish ability and often they would talk and make jokes about me while standing right in front of me. After days of non-stop Spanish and emotional stress, I felt as though I was slowly losing my grip of the language. I started to not care. One time I asked an assistant to repeat a question, and she shouted at me, “Why are you here if you don’t speak Spanish? You have no right to be here!” I cried.

I was allowed to breastfeed again once Emilio stopped vomiting. The nutritionist then swiftly arrived and told me it was unhealthy to do so at his age. Luis and I had now taken to arguing during the five minutes we had together every day, and he started questioning all of our parenting decisions. He told me I had been feeding Emilio wrong all this time, and that he needed to be having more sugar. “What the f*** are you talking about?!” I screeched, unable to believe my ears. Turns out the nutritionist had told him that Emilio should be drinking fruit juices instead of water, and that every meal needed to have a sweet treat afterwards.

The expat community really reached out to me during Emilio’s hospitalization, and I cannot even begin to express my gratitude. I had no internet in hospital so every time I came home and waited for the bath water to boil, I would read messages that people – some I didn’t even know – would send. The people down Zapata rallied around us too, and Luis’ father and stepmother provided a further pillar of support.   After a week of endless exams and tests, misinformation about Emilio’s condition (“he has “X” and needs to stay here for another week”), rude staff and 2am treks to the toilet, we finally got some answers. Emilio was having febrile convulsions without fever being present, an extremely rare occurrence but not impossible. Or so they thought. They really didn’t have any idea. But they said he was much better and all the tests were coming back fine so we could leave … after all the forms had been completed and we had paid.

“Great! You stay here and I will go and clean the house, and get it ready for Emilio’s return” I told Luis and raced home, with a skip in my step.Our house was a pigsty but I dutifully cleaned it and waited. It was dark by the time these “forms” were completed. There are no words for the look of joy when Emilio returned but the journey was not yet over. As well as having a week’s worth of drugs still in his system and still barely eating, he had also developed an extreme fear of pretty much everything. He refused to sleep in his room, refused to be away from my side, shrieked in terror whenever he saw another person besides me and Luis, and barely smiled for weeks afterwards. He was like a shell. It took months before he recovered emotionally.

Roberto del Rio is one of the best public hospitals in Santiago. It has faster access to resources than the local private hospital. It also costs tuppence in comparison to the cost of going private. I cannot fault any of the doctors, really, who dealt with a high influx of patients very well. The doctors in Emergency were kind and responsive. When the case turned serious, tests were organized without delay. The staff that worked in the canteen were pleasant enough, and the food decent. There were small acts of kindness by several nurses and assistants that I will always remember. Everything else was a shambles. I do not know if the staff were overworked (to be fair, most of the time the nurses just sat around talking) but what I do know is that many times I felt unfriendliness and even animosity from them. Being forced away from my son for indeterminable periods twice a day while doctors poked and prodded seemed unbearably cruel for someone so young that couldn’t understand what was going on. I am thankful that Emilio was looked after and I am thankful that these services exist for people who do not have the funds to afford better, but I am also angry. I am angry that most of the people were too accustomed to not asking questions that they suffered in silence. I am angry that the young girl who left her baby at night did so thinking he was being looked after, but he wasn’t. I am angry that Emilio was forced to hurt himself, day after day, while alone in his cot and no-one tried to help him. I am angry that I was not respected because I am foreign. I am angry on behalf of all the mothers and fathers who cried outside the ward waiting to go back in, or who crept outside to sleep on the floor. I don’t know what the answer is, all I know is that we deserve more. A smile, after all, costs nothing.

11174809_10153239583245097_794858555395659766_n
View from our window.

8 comments

  1. Wow… Your story has left me speechless. I am an American who grew up poor and twice, as a child, my mother had to navigate a charity (as they call it) hospital system with me. . I am still amazed that a child could be so ignored by private hospitals (during emergency situations) because of no health insurance as well as by the sheer volume of people that relied on this “charity” hospital.

    Be strong and know that your son sees your strength and love.

    John

    Like

  2. Oh god. I can’t believe people could be so cruel. And to separate you from your child during the doctors’ rounds is crazy! A baby can’t advocate for himself! I’m so glad he is better now, and that you are all home safe.
    Some of the unkindness though is cultural. My son needed stitches to 11 cuts on his legs, we were at Clinica Alemana, Nico was screaming, and the doctor just kept telling him it didn’t hurt, and the nurse said he made them take ten times as long as it should. Bastards.
    Oh man. My heart is still pounding from reading your story.

    Like

  3. I’m so very sorry for your terrible experience.
    Been chileno I feel shame for the pain that you and your family suffer in that occasion. I hope the system get better soon. nobody should go through such a nightmare.

    Like

  4. Good Lord! I am horrified!!! Utterly shocked. Infact, your article actually made me feel desperate for all those who experience this kind of treatment (or lack there-of). So wrong. Every person has the RIGHT to adequate medical care (and education) something seriously must happen with this system! I hope too that you managed to convince Luis about the sugar issue. Abolute bullocks…

    Liked by 1 person

  5. Thank you so much for sharing your story! You left me speechless as well and quite afraid. How can people become so cruel? When I was hospitalized in Santiago something very similar happened to me..I am angry and sad about the situation in Chiles public health and education institutions for a long time and private ones aren´t much better. Everything is about money. Humanity lacks wherever you look that why the few exceptions shimmer that brightly.

    Liked by 1 person

  6. What an awful experience, I am glad you son recovered, but am sorry to hear ypu you both went through. I moved to Chile with two young children a few years ago, and although we have not had too much experience with the public health system, the two times I used the consultorio with my son what striked me most was the appaling atittude of some of the staff, for which I find no excuse.

    Liked by 1 person

  7. please check your child’s iron deficiency. There are many links showing iron deficiency to febrile convlusions

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s